I’ve found that many of the people that stumble upon this blog do so by searching “dialysis” or some other related term that I’ve mentioned in my posts. The blogstats that wordpress gathers keeps readers anonymous but sometimes tells me what keywords people searched that led them to click toward this site. Thus, I’d like to expand my blog by creating this page where people can post questions or thoughts on dialysis or kidney disease that I could answer or address from my personal experience. I am NOT a doctor. However, I have had FSGS since age five, a nephrectomy and transplant and transplant removal between 4th and 7th grades (about 12 years ago) and have been on dialysis since then. In that time since the failed transplant, which became diseased, not rejected, I spent six or seven years doing peritoneal dialysis and the last five doing hemo. Currently, I am doing my own treatments at home with the NXstage cycler and have been on this regimen for the past year and a half or so. I have a fistula, I put the needles in myself and my family and friends combine to form what I like to refer to as my “d-squad.” My sister is Varsity Captain.
Anyways, if you’re a patient new to dialysis, a family member of a patient trying to understand the options, or anyone interested in what life on dialysis is like, I’d be happy to share my thoughts. Simply leave a reply and I’ll write back below it.
